Back to School AT Blog Carnival is Up


The Back to School Edition of the Assistive Technology Blog Carnival is up and ready to read.

This month has some great posts sharing parent's perspectives from their blogs where they share their heart about their special needs kids.

There is a wonderful post on print disability tools for the Mac, a visit to a special Education teacher's classroom and a post on creating audio books on your own.

Take some time to visit and enjoy!

All the best to you!

Missing: 90,000 Children with Traumatic Brain Injuries Each Year

Nationwide Statistics show that there are far more cases of Emergency Room- verified Traumatic Brain Injury in children than there are identifications of TBI disabilities in schools, according to Karen McAvoy, Ph.D. and Judy Dettmer, Ph.D.
In a 2-day workshop on "RTI, Assessment, & Special Education Process for Students with Traumatic Brain Injury", I found some very interesting information that I am passing on to you with our colleagues' permission.
Our trainers shared that TBI, has been classified as a low incident disability. But when you look at the ramifications of nation-wide statistics from the U.S. Dept. of Education, The National Center for Disease Control and the National Pediatric Registry, the data tells an interesting story...

National Data:
The National Center for Disease Control states that there is an annual average of 435,000 Emergency Room visits, 37,000 hospitalizations and 2,685 deaths among children due to TBI. This number only identifies those who had the injury reported and were admitted to a hospital. It does not include injuries where the child remained under care at home and did not receive formal medical treatment or where the patient was released without a TBI diagnosis. Because the actual number is low due to the non-reported incidents, experts think that the actual number could be closer to 1.4 million children with TBI injuries a year.
The U.S. Department of Education has said that there is an average of 475,000 TBI injuries among children a year. Their data shows that during the 1991-1992 school year, there were a total of 4, 499,824 students receiving special education. Out of that total, only 245 were served under a TBI disability category.
During the 1999 -2000 school year, 5,683,707 students were receiving special education services and of that total, 13,874 children were served under the TBI disability category. 2005 data shows that out of 6,021,462 students receiving special education services, there were 23,449 TBI students.
The above statistics show an increase in children served under the TBI category from 1991 to 2005, and according to the speakers at our conference, there was a lot of hard work done in building awareness about TBI in the school sector during those years.
It is interesting to note though that in 1991, Autism received its' own disability category and in 1992 there were 15,302 students identified. By 2005, there were 192,643 students identified as having autism. There were around 170,000 more identified students for autism than TBI.
In Oregon, 2006 statistics show 1008 students hospitalized for TBI. Oregon had 269 identified students that year.
The National Pediatric Registry reports that 19% of youths who sustain a brain injury will have long term disabilities. Reviewing the data from USDOE and using the 19% guideline, we could conservatively estimate that 19% of 475,000 average reported injuries a year leave us with 90,250 a year nationally. If in 1991 there were 245 children identified, what happened to the other 90,005 children? The presenters asked us, "Are we missing 90,000 students with brain injuries?" and more importantly, "Why are we not identifying these children?"

I will share tomorrow on some possible reasons for identification issues as well as some of the charateristics of TBI for those of you who might like to learn more about TBI. I will also share some AT ideas during the week as well.

All the best to you!
Lon

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The 504 Plan: An Under-used Tool in Accommodating Learners?

Is the 504 under-used? Should we give ALL students access to the tools that would be given to accommodate students on a 504 plan? If we did, wouldn't we be covering the needs of everyone?
I was researching these questions and reading up on the implementation of a 504 Plan under the Rehabilitation Act of 1973. I know that it gives "legal teeth" to folks that need to advocate for equal access and fight discrimination. That is a good thing and I don't want to sound like this post is advising that we should not use a 504 plan. I just see that there are tools we would use on a 504 that maybe should be considered standard support for anyone. But first, let's look a minute at the 504:
I found a good advocacy resource site, Special Education Advocacy.com. They have a nice glossary of descriptions that relate to special ed and advocacy. These descriptions are a real help to parents that are new to this whole area and need to find some answers. They shared that the 504 is often an under-used tool in the education arena. "The 504 protects individuals with disabilities from discrimination from policies or a lack of equipment from recipients of federal funding". Maybe schools and parents don't take advantage of the power in this tool - instead they either do nothing or go for broke with testing and working on an IEP?
The site's description of 5o4 meetings brought out that the end-result of an effective 504 plan should be equal access for academic success and student achievement in a course of study - not a focus on a disability and why it prevents success. The plan should be developed to encompass not only modifications and accommodations for the curriculum and equal access to the course materials, but also equal access to evaluations, test and assessments of student mastery of content.
The 504 is intended to provide access for those with a disability in the general education setting rather than in special education and an IEP. For those that are unclear (and in my research online I find many professionals and parents alike that are unsure of the actual "legalese") I have a good definition from LD Online - a great resource too by the way...

"A 504 plan is a legal document that outlines a plan of instructional services for students in the general education setting. Students with ADHD often have a 504 plan. While not an IEP, the document usually describes the types of accommodations that will be made for a student in school."

These accomodations can include providing extra support through readers, interpreters or assistive technology such as text to speech tools, special word processing support tools, etc.

If you are a parent sensing that your child has more going on than meets the eye as far as their lack of ability to succeed at school, you might want to explore the 504 as a tool. My thought as to why it is under-used is that possibly it is not commonly presented as an option to parents for fear of over-use. I can hear administrators asking: "What if every parent that thinks their child isn't doing well at school wanted a 504 plan written out and followed? Yikes! What would we do?"

Here is my question: "With all the federal mandates and accountability pieces for average yearly progress staring us in the face and the threat of dropping student achievement, why wouldn't we WANT to identify those with disabilities and accommodate them so they can be successful? "

And then here's another concept:
As well as accommodating special needs for IEP's, special education and 504's, why don't we provide ALL students with the tools they need to succeed, teach them how to use them to self-accommodate, and then no student needs to stick out and be embarassed and we can see the legal mandates for 504's from the Rehab Act and IDEA met in one full swoop. Seems like a lot easier road to me. Maybe I am over-simplifying it.

For a list of links for tools that can support learning for ALL students - and could be a strong support for students on a 504 plan, see my post here.


All the best to you!

Lon


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